Thursday, 4 June 2020

It's been a long time

Well hello there everyone it's been a very long time and I am really sorry about that but mentally I was not in a good place and had to take some time to myself. Despite being on anti-depressants and anxiety medications I wasn't in a good place, I lost interest in everything I liked to do and I had no energy or motivation to do anything, even the simple things like making food and taking care of my personal hygiene was tough. Thankfully though things have got better after I was treated for a B12 and folate deficiency. B12 and folate deficiency can cause depression, anxiety, tiredness, and lack of energy so it explains why I was still struggling despite taking the anti-depressants and anxiety medication. Sadly though despite being treated for the deficiencies I do still suffer fatigue but at least my mental health is doing better than it was and hopefully I do not go back to the place I was at mentally for the past 10-11 months.

Now that I have got myself out of the hole and got my passion for blogging back I will be posting new posts on this blog as well as my new blog Crohn's Dysphagia and Ostomies. Hopefully, my first post will be up on this blog this week but I can't 100% guarantee that because right now I am on antibiotics which gives me really bad side effects but I will try my very best to get it posted by next week.

Well, that's it for today's post, until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


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Monday, 26 August 2019

Friday 26th July 2019

Well, this past week has been a bit of a nightmare for my health because we are going through a heatwave right now and with what I have they do not go together. Having your large bowel removed means you are more prone to dehydration because that part of the bowel plays a big part in absorbing water so you can probably imagine how hard it is to stay hydrated in this ridiculous heat. I have been struggling really bad and have been dealing with all the symptoms you can get, dry mouth, dry skin, low urine output, headaches, I actually had chest pain last night which made me think my potassium was low so I drunk a lot of water and thankfully the pain went away.

This past week my stomach pain has been acting up but thankfully it's not long until my IBD clinic appointment. I don't know how much they will be able to do if it is adhesions, I know they can do surgery but the last abdominal surgery I had was extremely painful to the point that ketamine barely touched the pain post-operation. Even though surgery is a way to fix the adhesions it will just cause more scarring tissue to happen which will cause more adhesions because scarring from surgery is what causes adhesions.

Well, that's it for today's post, I hope you enjoyed reading and it shouldn't be too long before you see a new one, until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Tuesday 16th July
next post -                          

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Tuesday, 30 July 2019

Tuesday 16th July 2019

The chronic pain in my shoulder has been driving me round the twist this past weekend. It really is starting to control my life, I am barely using my right arm because I am scared to cause myself any more pain. I don't understand how bad joint pain can be so bad when there is no inflammation in my body plus I don't have anything like arthritis even though that can be a side effect of having Crohn's. When I went to get my shoulder x-ray done two and a half weeks ago they said the results would be back within two weeks but surprise, surprise they are not. To be honest, I am not surprised they weren't, I have never had radiology results come back so quickly as an outpatient. I am really getting to the tether as my depression is now being triggered but I really don't know what more they can do as I am already on 3 pain medications, paracetamol, dihydrocodeine, and gabapentin.

Despite all the pain, I took another step forward in beating my social anxiety. I don't really think I have talked about it much on here but I am a PC gamer and one of my all-time favorite games is Arma 3 which is a military simulator. I have been with the same Arma 3 community for the past two and a half years but this past weekend I decided to take the plunge and apply to another community. Previously with my social anxiety, I would never have gone out of my comfort zone and apply for this other community. I am pleased to announce that I got accepted and I just have to do my 2 phases of training before I can join in the missions, I wish I applied sooner now.

Well, that's it for today's post, I hope you enjoyed reading and it shouldn't be too long before you see a new one, until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Friday 12th 2019
next post -                          

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Monday, 15 July 2019

Friday 12th July 2019

Since I last wrote several positive and negative things have happened since I last posted on here. I think I will start with the positive things. After 2 previous failed attempts I finally managed to go and visit my friend Lizzy down in the London area and get on a plane to Heathrow which is one of the World's busiest airports all by myself.



For those who are new to reading my blog, I use to have agoraphobia and was not able to go out of the house for a couple of years so doing this trip was a massive achievement for me. Sadly though my trip didn't go completely to plan and it was cut short due to me ending up with some type of gastro bug type thing. Trying to get a flight home was a bit of a nightmare because the flight I managed to book from Heathrow was overbooked so I couldn't get on that plane but thankfully Loganair came to the rescue and I was able to get a seat on their flight from Southend.



You may be wondering why I decided to come home, it was due to my being unsure of what the actual cause was. Five days before I left I had a partial blockage which will become more relevant later on but the last time I got an upset stomach as bad as what I was having I had to be admitted to the hospital for fluids and potassium because my body couldn't cope with having gastroenteritis. As much as I didn't want to come home, I also didn't really want to be stuck in a hospital with a gastro team that didn't know me because I am so complex and I also didn't want to be a bother to Lizzy and her family because as my fellow chronic illness warriors know life can be tough on the patient, family, and friends. Once I arrived home on Sunday evening I immediately had a shower so that I didn't pick any bugs from being on the plane and headed straight to bed. I woke up the following day and was still not feeling any better so I phoned my doctor's surgery and thankfully I got seen just after 11am in the morning which is pretty quick for a Monday as waiting times can be pretty long. The doctor that I saw was not 100% sure what was causing my illness so she decided to send away a blood and stool (poo) sample as well as give me another anti-sickness medication. After a few days of rest, I was feeling a bit better but still not that well despite the test results coming back normal. After a week and a bit of still feeling pain, sickness, and acid reflux I decided to go back to the doctor because I was getting a bit concerned. I saw the same doctor that I did the first time around, she checked my pulse, blood pressure and temperature which were all normal. The last check that she did was of my stomach, she felt an area of fullness so Dr. E thinks my pain and sickness is due to bowel adhesions. Adhesions are sadly a side effect of having the surgery I have had. The doctor decided to put me onto a new anti-sickness medication called metoclopramide, what is different about this medication compared to the other anti-sicknesses is it makes your stomach empty quicker than normal. After being at the doctor I phoned my IBD nurse to let her know what was going on and she thought it was best for me to be seen at the IBD clinic as soon as possible so I have had managed to score myself an appointment for the 7th August, so it's not too far away.

Well, that's it for today's post, I hope you enjoyed reading and it shouldn't be too long before you see a new one, until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Where I have been
next post - Tuesday 16th 2019

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Wednesday, 3 July 2019

Where have I been

So hello there everyone, how are you all doing today?

As you may have seen there has been a serious lack of blog posts for a bit and that is due to a couple of reasons. So in June I was away from home visiting my best friend forever Lizzy in Essex, sadly though 6 days into my trip I became unwell and had to get an urgent flight home which was a whole heap of hassle but all I am going to say is thank goodness for Scottish airline Loganair and there Southend to Aberdeen flight.



Ever since I came back from my trip I have been having health problems which I am going to do more in-depth posts on, thankfully though I am now doing better and ready to get back to some sort of normal or should I say my normal as I will never be completely healthy as much as I want that so bad.


Well, that's it for today's post, after I have finished this post I will start working on some new posts so it shouldn't be too long before you see a new one, until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Saturday 30th March
next post -                          


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Friday, 10 May 2019

Saturday 30th March 2019

In my last entry, I was talking about getting gabapentin for my shoulder pain. It took me 2 days to get the prescription filled because a) the chemist could not give me tablets and b) they forgot to order the liquid medication.

So on Tuesday, I couldn't get the prescription filled because they didn't have a liquid form so they said had to order a bottle of liquid medicine from their stockist and that it would be ready for pick up on Wednesday. Just after lunchtime on Wednesday, I phoned to see if it was ready for pick up so the woman that answered the phone went to check. After being on hold for a few minutes she comes back and says the prescription wouldn't be ready because the medication had not been delivered. I was so annoyed, frustrated and really scared because the pain was making my depression so bad because the suicidal thoughts were starting to pop into my head. Sadly with the depression I have, I do tend to get suicidal thoughts and the reason I got them this time was due to lack of sleep and feeling that this nagging pain will never go away.

On Thursday I finally got the gabapentin and I was so grateful for it. When you start gabapentin you have to build up to the dose that you are supposed to be on, the dose that they wanted to me to be on is 100mg three times a day. For the first day I have to take 100mg once a week, the second week I have to take 100mg two times a day and the third week I take the prescribed dose of 100mg three times a day. I decided the best time to take the dose was before I went to bed because I thought it would relieve the pain enough for me to sleep. The gabapentin did help me sleep on Thursday night the only issue is it's making me really sleepy and I am having a really hard time staying awake which really sucks. It does say on the label "if sleepy do not drive" but I have been on numerous medications that have that on the label but they have never made me as sleepy as this, I do wonder if it is the combination of lack of sleep and new medication that is causing me to be so tired. I really hope that this wears off in the next couple of days because if it doesn't then I will have to stop taking it.

Well, that's it for today's post, I hope you enjoyed reading the post. I am already working on a draft for my next post so everything being well you should be able to read it by the end of this week but until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Thursday 21st March
next post -  Where have I been  


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Wednesday, 1 May 2019

Tuesday 26th March 2019

So ever since I had my 5 day bleed from my problem wound the recurring shoulder pain that I have has been getting progressively worse for over the past week. I have had pain in my shoulder previously but it normally lasts for a few days never a week. I am aware of certain health issues in the abdomen causing referred shoulder pain so I am wondering if the wound that I have where my rectum should be is the cause of my pain. I really should have asked the surgeon when I saw her at the clinic but there was so much going on that it never crossed my mind. The thing about this shoulder pain is, it has been going on for longer then the wound has been there but as I have mentioned in the previous posts the cause of the wound is unknown but one of the potential causes is an abscess so even though the wound wasn't open the abscess would have been growing.

The bad thing is this isn't the worse pain I have felt but it is certainly the most annoying. Over the years I have mainly had sharp stabbing pains but this is a dull, nagging, uncomfortable pain and as well those feelings it also feels like it's being squeezed really tightly. The best way to describe what it feels like is one of those blood pressure machines squeezing your arm all the time.

In May last year (2018) I went to the doctor about my shoulder pain and how it was causing me to get really depressed, I was barely able to sleep and couldn't really move my arm because the discomfort was that bad. When I went to my appointment I saw my regular GP and he put me on gabapentin but once the prescription ran out I never got another one because I didn't find it worked that well. Today though I couldn't take the nagging pain anymore, I literally felt like it was making me go insane and I really wanted to rip my arm off. Instead of phoning and asking to speak to the duty doctor I thought I would try my luck and phone the repeat prescription line but they said I needed to speak to the pharmacist so I spoke to her and explained the whole situation to her. She agreed to issue the prescription for 1 months supply on the condition I made an appointment with one of the GP's.

Things didn't exactly go to plan though and I couldn't pick up the prescription that day. Last year when I got the prescription from the doctor he gave me capsules but this time round the pharmacist said that I could not open capsules, pour out the powder and mix it with water an flush it through my feeding tube so she would prescribed the liquid form of gabapentin, I really don't get why I can't just do it this time as well. The issue with liquid medications is chemists don't tend to stock them because they cost more then tablets so that means I am going to have to wait until tomorrow to get it so that means another day of nagging pain and a night with no sleep.

Well that's it for today's post, I hope you enjoyed reading the post. I am already working on a draft for my next post so everything being well you should be able to read it by the end of this week but until next time................


Keep strong
and 
Keep fighting

💓💙💚💛💜 


previous post - Thursday 21st March
next post - Saturday 30th March


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