So I didn't write yesterday because I felt so rubbish and ended up going to bed at 7.30pm, I slept for 12 hours straight and then had a 3 hour nap in this afternoon.
Thankfully today I am feeling so much better and I have finally worked out what was causing me the high temperature, sickness and another stuff, it was my the time of the month. I never knew that time of the month could cause you to be so ill, I am so not looking forward to this happening every month.
Yesterday in the mail I got an appointment letter through for seeing my colorectal surgeon, it will be very interesting to see what she says about my non healing surgical wound which I will have had for 5 years at the end of next month. I really can't believe that it will be 5 years next month since I had my first ostomy.
Showing posts with label life. Show all posts
Showing posts with label life. Show all posts
Friday, 13 September 2013
Thursday, 12 September 2013
Wednesday 11th September 2013
Today my temperature finally went back down to 36.6C thank goodness. I am still feel pretty rubbish though but hopefully this is the beginning of me getting better because I really, really, really want to go to London in just over 2 weeks.
Thankfully the piece of pasta that was stuck in my oesophagus shifted last night so today I was able to eat and drink today, I am so gratefaul that it moved because I am mentally not ready to go back to flushing water through my PEG tunbe every hour for the whole day.
So seeing as I have been unwell for a week I thought I deserved to take advantage of the 10% of beauty and fragrance at Debenhams, I know I shouldn't have because I don't have a lot of money but I always believe that once you have come through a bad period of health you deserve to treat yourself to your favourite things and my favourite things are makeup.
Thankfully the piece of pasta that was stuck in my oesophagus shifted last night so today I was able to eat and drink today, I am so gratefaul that it moved because I am mentally not ready to go back to flushing water through my PEG tunbe every hour for the whole day.
So seeing as I have been unwell for a week I thought I deserved to take advantage of the 10% of beauty and fragrance at Debenhams, I know I shouldn't have because I don't have a lot of money but I always believe that once you have come through a bad period of health you deserve to treat yourself to your favourite things and my favourite things are makeup.
Wednesday, 11 September 2013
Tuesday 10th September 2013
I am losing the battle against whatever is causing my temperature. I am not in any pain or feeling sick and there is no sign of a UTI (urinary tract infection) which is the infection that I normally get, my ostomy is working fine, I have no cough or chest pain so that would rule out a chest infection, I am completely stumped.
Today hasn't been a good day for eating either I managed the mince and tatties (potatoes) that I had for my lunch no problem but I had pasta for supper and a piece of pasta got stuck in the oesophageal stricture at the top and as I am writing this it is still stuck there and I am finding it hard to drink.
And the final bad thing is my cat's leg is worse today. :-( She had her 2nd dose of anti-inflammatories this evening so I really hope they start working soon.
All in all today has been a crap day.
Today hasn't been a good day for eating either I managed the mince and tatties (potatoes) that I had for my lunch no problem but I had pasta for supper and a piece of pasta got stuck in the oesophageal stricture at the top and as I am writing this it is still stuck there and I am finding it hard to drink.
And the final bad thing is my cat's leg is worse today. :-( She had her 2nd dose of anti-inflammatories this evening so I really hope they start working soon.
All in all today has been a crap day.
Monday, 9 September 2013
Monday 9th September 2013
I have finally solved the candle issue which hopefully means no more arguing with mum over them. I have found a electric tart burner on the Yankee Candle website.
Now it is not the most attractive thing but if it means I can still have the lovely Yankee Candle scents then I don't care.
Today has been pretty much the same as the other day's health wise accept today I have develop 2 cold sores and an ulcer on my tongue. I don't if I should phone my GI or not because I am really scared that if I do that something will happen like being admitted to hospital and then I won't be able to go to London to see Paramore at the end of September.
So I had to take my kitty cat Snowball to the vet this evening with her sore leg, the vet examined her the best she could and said that Snowball has inflammation in her hip. The vet gave her a 7 day course of metacam but if she is still having problems after she has finished the metacam I will have to take her back to the vet so they can sedate her to get a proper look at the hip and they will also do an x-ray.
Now it is not the most attractive thing but if it means I can still have the lovely Yankee Candle scents then I don't care.
Today has been pretty much the same as the other day's health wise accept today I have develop 2 cold sores and an ulcer on my tongue. I don't if I should phone my GI or not because I am really scared that if I do that something will happen like being admitted to hospital and then I won't be able to go to London to see Paramore at the end of September.
So I had to take my kitty cat Snowball to the vet this evening with her sore leg, the vet examined her the best she could and said that Snowball has inflammation in her hip. The vet gave her a 7 day course of metacam but if she is still having problems after she has finished the metacam I will have to take her back to the vet so they can sedate her to get a proper look at the hip and they will also do an x-ray.
Sunday, 8 September 2013
Sunday 8th September 2013
Today has just been the same as the last few days, in bed with a high temperature. I was thinking about phoning the doctor tomorrow but I am going to have to put that on hold because I am going to have to take the cat to the vet because she has hurt her leg.
I really need to get back on track with my fitness regime next week after doing nothing last week, everybody says to me that I should rest but if I did that every time Crohn's decided to act up I would always be in bed plus I need to get my body in good condition just in case I have to have an operation on my oesophagus.
I have had lots of blog post ideas over the weekend for my Crohn's and beauty blog so that will keep me busy for most of the week as well, I always like it when I have a good number of things to do it distracts me from my poor health.
I really need to get back on track with my fitness regime next week after doing nothing last week, everybody says to me that I should rest but if I did that every time Crohn's decided to act up I would always be in bed plus I need to get my body in good condition just in case I have to have an operation on my oesophagus.
I have had lots of blog post ideas over the weekend for my Crohn's and beauty blog so that will keep me busy for most of the week as well, I always like it when I have a good number of things to do it distracts me from my poor health.
Saturday, 7 September 2013
Saturday 7th September 2013
Guess what I did today? That's right absolutely nothing, I didn't sleep at all last night so I think my insomnia has decided to come back again. Words can not describe how pissed off I am, I have had a great 3 weeks of proper nights sleep and now it has gone back to the way it was before.
I just realised that yesterday was 4 weeks since my oesophageal dilation and my diet is restricted again. These last few days I have been thinking is it worth while putting my body through the stress of a general anaesthetic and dilation for something that only stays open a couple of weeks. At the moment I don't think it is worth it but that might change in the next couple of weeks once the really bad hunger sets in.
I just realised that yesterday was 4 weeks since my oesophageal dilation and my diet is restricted again. These last few days I have been thinking is it worth while putting my body through the stress of a general anaesthetic and dilation for something that only stays open a couple of weeks. At the moment I don't think it is worth it but that might change in the next couple of weeks once the really bad hunger sets in.
Friday 6th September 2013
Today I did absolutely nothing because I had a really rubbish night last night and hardly got any sleep plus today I have still been feeling crap. The most exciting thing that happened to me today was that my stoma (ostomy) bag decided to burst again, it wasn't until it burst that I realised that the stoma nurse never did phone me back last Friday. I phoned a week past Thursday and left a message because I wanted to know what I should do about the bursting ostomy bags and I also want to know how I go about getting 2 piece bags because my fellow IBD friends Amy and Charlotte say they are a great type of bag.
Also today I was looking online at some Halloween decoration's to cheer myself and before people say anything yes I know I am 25 and I am not a kid anymore but I just love celebrating any type of holiday. I managed to find this really cool lantern but it is quite expensive at just over £20.
It does look like it is worth the £20 though and I can make it the only Halloween decoration that I buy this year.
Also today I was looking online at some Halloween decoration's to cheer myself and before people say anything yes I know I am 25 and I am not a kid anymore but I just love celebrating any type of holiday. I managed to find this really cool lantern but it is quite expensive at just over £20.
It does look like it is worth the £20 though and I can make it the only Halloween decoration that I buy this year.
Friday, 6 September 2013
Thursday 5th September 2013
Today has not been a good day, I have been feeling rough all day and it ruined my plans for this evening. I try really hard to not let my illness control my life but today it won, I really hope that this is just a small hiccup and it will only last for a couple of days.
I nearly had a full blown row with mum this afternoon because she told me that if we move house I wouldn't be able to burn candles which is so unfair. I don't want to give up my candles because they are one of the things that I enjoy and burning candles is something that a person with a chronic illness must be allowed to do, I know that it will sound stupid to those who don't suffer from poor health. She said that if I didn't like it I could find my own place, there is nothing that I would like to do more but my finances at the moment do not allow it.
I nearly had a full blown row with mum this afternoon because she told me that if we move house I wouldn't be able to burn candles which is so unfair. I don't want to give up my candles because they are one of the things that I enjoy and burning candles is something that a person with a chronic illness must be allowed to do, I know that it will sound stupid to those who don't suffer from poor health. She said that if I didn't like it I could find my own place, there is nothing that I would like to do more but my finances at the moment do not allow it.
Wednesday, 4 September 2013
Wednesday 4th September 2013
This morning I woke up feeling like I haven't slept even though I had 7 hours sleep, it must be due to the 7am starts all this week but thankfully today is not as warm out so that means the grumpy bitch has disappeared.
Today I decided to try food that wasn't my safe foods and it wasn't a good idea. I had one packed of Doritos crisps (chips) left in the cupboard so I decided to try and eat them, after I struggled to eat a few I finally choked on one. I will obviously just have to stick to my safe foods, the only thing I find with doing that is I don't get all the vitamins and minerals that I need but I suppose that is what the PEG feed is for.
Also today I have been really struggling with sickness, it's bad enough that Crohn's makes you feel sick but the added sickness due to time of month on top of that can make it unbearable. I have been taking my anti-sickness tablets but they have not been making any difference today.
Now finally on the good thing that happened today my auntie does not have a blot clot, woohoo :-) but she does have a lung infection. :-(
Today I decided to try food that wasn't my safe foods and it wasn't a good idea. I had one packed of Doritos crisps (chips) left in the cupboard so I decided to try and eat them, after I struggled to eat a few I finally choked on one. I will obviously just have to stick to my safe foods, the only thing I find with doing that is I don't get all the vitamins and minerals that I need but I suppose that is what the PEG feed is for.
Also today I have been really struggling with sickness, it's bad enough that Crohn's makes you feel sick but the added sickness due to time of month on top of that can make it unbearable. I have been taking my anti-sickness tablets but they have not been making any difference today.
Now finally on the good thing that happened today my auntie does not have a blot clot, woohoo :-) but she does have a lung infection. :-(
Tuesday, 3 September 2013
Tuesday 3rd September 2013
Today has been another roasting day with the temperature being 23C (73F). To some that may not be that warm but to me it is far to warm I am a winter girl, I really hope it is cooler tomorrow because the heat makes me very grumpy.
It hasn't been that bad of a Crohn's day and I haven't choked myself today which is a good thing but the most likely reason I haven't choked myself is, I ate only my safe foods which is pasta, beef mince, tatties (potatoes), and a cake.
Myself and the family got some bad news this evening, my auntie has been admitted to hospital with what they think is a blood clot but this women is a tough cookie she has colitis and won the battle against lymphoma twice so I am sure she will be fine.
It hasn't been that bad of a Crohn's day and I haven't choked myself today which is a good thing but the most likely reason I haven't choked myself is, I ate only my safe foods which is pasta, beef mince, tatties (potatoes), and a cake.
Myself and the family got some bad news this evening, my auntie has been admitted to hospital with what they think is a blood clot but this women is a tough cookie she has colitis and won the battle against lymphoma twice so I am sure she will be fine.
Welcome to my Diary
Hello everyone and welcome to my new blog. If you have followed me on Twitter and Facebook you will know that my Crohn's Quine Diary was originally on tumblr but I have now decided that I want to have all my blogs on blogspot.
What I will be writing on this blog is pretty much self explanatory, I will be trying to write diary entries as much as possible but I can't guarantee that it will be everyday.
Hopefully this blog will reassure people that they are not alone in their suffering and maybe it will even show the people who do not have chronic illnesses how hard are our lives can be.
What I will be writing on this blog is pretty much self explanatory, I will be trying to write diary entries as much as possible but I can't guarantee that it will be everyday.
Hopefully this blog will reassure people that they are not alone in their suffering and maybe it will even show the people who do not have chronic illnesses how hard are our lives can be.
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