Tuesday 10th June 2014

So the stupid grumpy guts are still playing up and the IBD nurse has still not phoned me back. I was suppose to go to the IBD clinic on Friday but obviously due to having agoraphobia I couldn't go so I phoned the nurse on Friday to explain that my crohn's is still flaring and I asked if they could change my humria from fortnightly to weekly injections. When I spoke to on her at 8.40am on Friday morning she was just going to clinic and would ask the doctors about getting the humria changed, she said that she would not be able to phone me back on Friday and I said that was no problem but I thought she would have at least phoned me back by now. To be honest I don't know how much longer I can live like this the pain in progressively getting worse and so is the fevers.

My new bedroom furniture arrived yesterday and their was little bit of hiccup, instead of getting the smaller dressing table I had ordered I got the larger one but to be honest the larger one looks a lot better then the small one so I have have decided to keep it. 

All the furniture has been put together and I love it. 

Hopefully I will be able to give the furniture a wipe down tomorrow and then be able to start to put things in the cupboards and drawers. 


Previous post - Friday 6th June

Next post -  Tuesday 24th June

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Friday 6th June 2014

So today as massive weight was lift from my shoulder's.

Today I made it public that I am suffering from agoraphobia. I have been battling with anxiety for years but it turned in to agoraphobia back in April after I was put through an awful lot of stress due to a screwed up oesophageal dilation. It feels really good to get it out in the open as it really was becoming to difficult to hide it from folk (people), I actually feel less stressed now as well.

So since I last wrote my bedroom has finished being painted also the wood work has been paint a cream colour, the new bedroom furniture is being delivered on Monday and someone is hopefully coming next week to measure the window so I can get a cream wooden venetian blind. It's going to be weird sleeping in my bedroom again after sleeping in the living room for the past 3 weeks.


Previous post - Monday 2nd June

Next post - Tuesday 10th June

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Monday 2nd June 2014

This past weekend has been pretty rough and it all started on Friday morning.

I woke up on Friday morning with sore legs and to be honest I just thought I had layin wrong. I woke up on Saturday morning and once again they were sore so I decided to just stay at home and rest instead of going into town because normally if I walk on them when they are like that they end up swelling up and I also develop a red pin prick rash. As the day progressed the grumpy guts aka bowel decided that it wanted to throw a tantrum, it also decided to continue the tantrum on Sunday so I spent the day in bed and didn't get anything productive done this weekend.

All I can say is thank goodness I have the IBD clinic on Friday hopefully they will make the decision this time to up the humria from fortnightly to weekly. They put it off the last time I mentioned at clinic in March because thought it was too soon to up the dose up but now it's 3 months later and nothing has changed so can they really refuse to change me to weekly injections this time.


Previous post - Wednesday 28th May

Next post - Friday 6th June

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Wednesday 28th May 2014

So today was not a good day and it was not the Crohn's that caused it this time.

Today I woke up with crippling anxiety and it was so bad that I couldn't leave the house. I haven't had anxiety this bad since I was in hospital getting the oesophageal dilation done, at least there was a reason for anxiety attacks then but this time there was no reason for it. I am really hoping that this is just a small slip up and that by tomorrow I will fell less anxious.

Today I finally got the phone call I have been waiting for, they are going to be delivering my new bedroom furniture on the 9th June. I cannot wait for it to finished as I am finally going to be getting the bedroom that I have wanted for years.


Previous post - Saturday 24th May

Next post - Monday 2nd June

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Saturday 24th May 2014

So today Crohn's has really been kicking my butt. I have been having these stomach pains since the middle of the week but today they got bad. The pain is in my pelvis so that means it could be adhesions, the fistula or a UTI that's causing the problem, I am leaning more to it being the fistula because there has hardly been any discharge coming from it since the beginning of the week, I really hope there is not some sort of blockage or abscess.

Thankfully Snowball seems to be doing okay after eating all those threads off her toy mouse on Wednesday, she was sick yesterday morning but it's not unusual for her to be sick every once in a while.


Previous post -Wednesday 21st May

Next post - Wednesday 28th May

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Wednesday 21st May 2014

I am so annoyed with  myself today, my cat Snowball has this toy mouse and because she is a bit destructive with her toys she manged to eat about half a dozen threads. Of course when I saw her eating them I immediately shouted NO! and of course when she hears the word no she thinks she is in trouble and takes off, I chased after her of course but by the time I caught her and opened her mouth she had swallowed the threads. I really hope that she is able to pass them because the last thing I want is for her to need an operation because I will never be able to forgive myself, if only I hadn't shouted no I could have got them from her.

So today I finally got my Superdrug (UK drugstore) order after having a few problems with it. Two weeks ago I saw one of my favourite YouTuber's (Siobhan from LetzMakeup) tweet that Superdrug were doing 3 for 2 on all their makeup so I thought to myself I deserve a treat, especially after what happened in April. So as it is now summer I purchased bright coloured makeup such as the Maybelline vivid lipstick's and the colourful Sleek eyeshadow palettes, I also purchased some cream eyeshadow's, blushes and nail polish. I can't wait to try out all the new makeup that I got there is something about playing around with makeup that makes me so happy.


Previous post - Monday 19th May

Next post - Saturday 24th May

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Monday 19th May 2014

So today was World IBD Day and it was probably the best World IBD day that I have had so far.

I decided this morning that I was going to ask my favourite non IBD suffer's to retweet this picture.

So some of my favourite paranormal investigator's (yes I believe in ghosts), British Touring Car driver's, youtuber's and musicians posted the picture on their feed and so many of there followers retweeted it. I decided to send a thank you tweet to every person that retweeted the picture, I know a lot of people will think I am stupid but I was just so grateful.

Honestly words can not describe how happy I was that they retweet this picture it finally feels that people are starting to become more aware about these terrible illnesses, I was also able to chat to some new IBD warrior's and to people who have family members and friends with IBD.

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