So apart from a few nightmare's I got a decent nights sleep last night which I was pretty surprised about, with the hotel been right next to the airport I thought it would be noisy.
Basically this morning consisted of travelling because Gatwick airport is on the outskirts of London so that means you have to take the Gatwick express train to get into Victoria station. This time instead of getting a taxi to get to Westminster which is where the hotel is located we decided to try the underground, this was my very first time on the underground and it was not as confusing as what I thought it was going to be. The underground is definitely the best way to travel in London plus it only cost £8 for a ticket that lasted all day.
We got to the hotel too early this afternoon but they said they would keep our suitcases so that we could go and do things. My choice of thing to do was go to the Imperial War Museum because when we were down in May it was completely closed for renovations, they are still currently doing work on the museum so a number of things weren't there so I will have to go back once they have finished doing the renovations.
After spending a couple of hours in the museum it was time to go back to the hotel to check in, even though we had been in the museum for a little while I still had time to rest before the Paramore concert. I was really grateful for the rest because my leg joints where starting to play up.
So we left the hotel to head off to the Paramore concert at 5.45pm and it was great that we only had to get on one underground train because the Jubilee line took us straight from Westminster to Wemebly, I can't remember how long it took us to get there. We had decided not to be there for exactly 6 o'clock which was the time the doors opened so that meant when arrived we didn't have to stand in a queue.
The concert was excellent and Hayley Williams has the most amazing voice, it was just a shame that it went by so quick :-( but they did play for nearly 2 hours so you can't complain. The trip back from the arena to the hotel was pretty uneventful and when I got back all I did was take of my makeup and go straight to bed.
Monday, 30 September 2013
Friday 27th September 2013
Today is the day that I am London bound but of course my body has decided to be very naughty and I have develop a stupid f***ing cold, oh well I am not going to let it ruin my weekend.
I was pretty stressed out this afternoon because I decided to take a nap so that I had enough energy for night time but I ended up sleeping longer then I wanted to and of course I had to rush to get packed, have a shower and change my ileostomy. Thankfully I managed to get everything done though and I think I possibly set a new record for change stoma.
The flight to Gatwick was delayed so we didn't end up getting to the hotel at Gatwick airport until after 11pm but the main thing is I am here and I can't wait for the Paramore concert tomorrow night.
I was pretty stressed out this afternoon because I decided to take a nap so that I had enough energy for night time but I ended up sleeping longer then I wanted to and of course I had to rush to get packed, have a shower and change my ileostomy. Thankfully I managed to get everything done though and I think I possibly set a new record for change stoma.
The flight to Gatwick was delayed so we didn't end up getting to the hotel at Gatwick airport until after 11pm but the main thing is I am here and I can't wait for the Paramore concert tomorrow night.
Thursday, 26 September 2013
Thursday 26th September 2013
These last couple of days have been pretty much the same health wise accept now I also feel sick but a bit of good news is I phoned GI today and I have managed to score myself a GI clinic appointment for the 9th October, woohoo!!!!! Originally I was phoning GI to get stronger pain medication but I thought I would try my luck and see if there was any clinic appointments, I am sure I will be able to cope for another couple of weeks.
So I was really happy that I managed to get a clinic appointment so soon but my happiness didn't last very long because today I went to pick up my repeat prescription for dihydrocodeine from chemist to find that my doctor had refused to issue it. I was absolutely fuming how can they refuse to give somebody who has a crohn's flare, adhesions and fistula pain medication, especially when the pain meds you are on is not strong enough in the first place. So I phoned my GP practice, spoke to a doctor and told them that they had to refill the prescription because I could not get a GI appointment for 2 weeks, he agreed to issue it but told me that I should make a review appointment with my normal GP but I said that there was no point in making an appointment until I had been to the clinic because they are the specialists and if they find it difficult to treat me then how on earth is a GP going to manage.
Tomorrow I am London bound and I am not going to lie I am a bit worried about this trip just because of the way I am feeling but hopefully having fun will distracted me from all the issues that I am having.
And one more thing and I can't believe that I nearly forgot to write about it, is I slept a full seven hours straight last night. It is so wonderful to get a full nights sleep for once and I really hope the same happens again tonight.
So I was really happy that I managed to get a clinic appointment so soon but my happiness didn't last very long because today I went to pick up my repeat prescription for dihydrocodeine from chemist to find that my doctor had refused to issue it. I was absolutely fuming how can they refuse to give somebody who has a crohn's flare, adhesions and fistula pain medication, especially when the pain meds you are on is not strong enough in the first place. So I phoned my GP practice, spoke to a doctor and told them that they had to refill the prescription because I could not get a GI appointment for 2 weeks, he agreed to issue it but told me that I should make a review appointment with my normal GP but I said that there was no point in making an appointment until I had been to the clinic because they are the specialists and if they find it difficult to treat me then how on earth is a GP going to manage.
Tomorrow I am London bound and I am not going to lie I am a bit worried about this trip just because of the way I am feeling but hopefully having fun will distracted me from all the issues that I am having.
And one more thing and I can't believe that I nearly forgot to write about it, is I slept a full seven hours straight last night. It is so wonderful to get a full nights sleep for once and I really hope the same happens again tonight.
Wednesday, 25 September 2013
Tuesday 24th September 2013
So I have had a crap couple of days regarding my health, the fistula is definitely leaking more and my pain medication is not strong enough some of the time. I think the time has come where I need to start those humria injections, which I am still not completely happy about but needs must I suppose plus there is nothing else to take at the moment apart from the humria.
I managed to get out of the house and go into town today which did me the world of good, even though I didn't have a successful shopping trip. The main reason I went into town was to get trousers for going away this weekend but unfortunately when you have bad bloating and an ostomy it makes it really difficult to find some, so that means it's legging's all the way for this weekend and fingers crossed it is not to cold.
I managed to get out of the house and go into town today which did me the world of good, even though I didn't have a successful shopping trip. The main reason I went into town was to get trousers for going away this weekend but unfortunately when you have bad bloating and an ostomy it makes it really difficult to find some, so that means it's legging's all the way for this weekend and fingers crossed it is not to cold.
Monday, 23 September 2013
Sunday 22nd September 2013
So yesterday I may have forgot to write an entry but honestly nothing that interesting happened apart from I was able to eat a whole chicken pasta dish without choking myself, woohoo. My oesophagus is one strange thing because ever since I had the really bad pain I have been able to eat everything, granted it takes me longer to eat than a normal person and it does tend to stick but the main thing is it is going down.
Today has been an uneventful day, I have had a few gut issues but I think that is to do with adhesions and also because of the pain I have been sleeping for most of the day. Writing these daily diary entries shows just what a boring life I lead, I really have to start doing something more interesting with my days.
Today has been an uneventful day, I have had a few gut issues but I think that is to do with adhesions and also because of the pain I have been sleeping for most of the day. Writing these daily diary entries shows just what a boring life I lead, I really have to start doing something more interesting with my days.
Friday, 20 September 2013
Friday 20th September 2013
So I didn't write a diary entry yesterday night because I tried to get an early night but it didn't quite work out as planned. I fell a sleep and 9.30pm and was wide awake by 2.30am, so as you can probably guess I slept from 12pm to 5.30pm this afternoon.
This week entries have been all about unhappy things so I think it is about time I speak about things that make me happy. I finally got my hands on the Kevyn Aucoin Making Faces book.
I couldn't get my hands on a new copy here in the UK so I finally plucked up the courage to buy a used copy from amazon. I was pretty worried about what condition it was going to be in but it is such good condition that you wouldn't even know that it is used.
This time next week I will have arrived at Gatwick airport, I seriously cannot wait for next week I always love being able to get away from the daily grind of problems. I know that getting away doesn't make your physical health problems go away but it really does help with the depression.
Thursday, 19 September 2013
Wednesday 18th September 2013
Today's diary is going to start like most others, I didn't get to sleep until 6am in the morning so I slept until 5.30pm this evening. This insomnia is really getting out of hand again, I think I am going to have to stay up all night and all day to try and get myself back into a good sleeping pattern because I cannot be like this for going to London.
So I slept on the decision I made yesterday not to have another oesophageal dilation and I still feel the same way today, now I just have to speak to my GI consultant about it and hope he agrees with my decision.
So after hunting for weeks for a new copy of the Kevyn Aucoin Making Faces book and not being find one, I decided to purchase a used from amazon. It's the first time that I have ever purchased something that is used from amazon, it said that it is was in very good condition but I am still a bit worried that it won't be as described. I'll just have to wait and see what happens.
So I slept on the decision I made yesterday not to have another oesophageal dilation and I still feel the same way today, now I just have to speak to my GI consultant about it and hope he agrees with my decision.
So after hunting for weeks for a new copy of the Kevyn Aucoin Making Faces book and not being find one, I decided to purchase a used from amazon. It's the first time that I have ever purchased something that is used from amazon, it said that it is was in very good condition but I am still a bit worried that it won't be as described. I'll just have to wait and see what happens.
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