Saturday 24th May 2014

So today Crohn's has really been kicking my butt. I have been having these stomach pains since the middle of the week but today they got bad. The pain is in my pelvis so that means it could be adhesions, the fistula or a UTI that's causing the problem, I am leaning more to it being the fistula because there has hardly been any discharge coming from it since the beginning of the week, I really hope there is not some sort of blockage or abscess.

Thankfully Snowball seems to be doing okay after eating all those threads off her toy mouse on Wednesday, she was sick yesterday morning but it's not unusual for her to be sick every once in a while.


Previous post -Wednesday 21st May

Next post - Wednesday 28th May

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Wednesday 21st May 2014

I am so annoyed with  myself today, my cat Snowball has this toy mouse and because she is a bit destructive with her toys she manged to eat about half a dozen threads. Of course when I saw her eating them I immediately shouted NO! and of course when she hears the word no she thinks she is in trouble and takes off, I chased after her of course but by the time I caught her and opened her mouth she had swallowed the threads. I really hope that she is able to pass them because the last thing I want is for her to need an operation because I will never be able to forgive myself, if only I hadn't shouted no I could have got them from her.

So today I finally got my Superdrug (UK drugstore) order after having a few problems with it. Two weeks ago I saw one of my favourite YouTuber's (Siobhan from LetzMakeup) tweet that Superdrug were doing 3 for 2 on all their makeup so I thought to myself I deserve a treat, especially after what happened in April. So as it is now summer I purchased bright coloured makeup such as the Maybelline vivid lipstick's and the colourful Sleek eyeshadow palettes, I also purchased some cream eyeshadow's, blushes and nail polish. I can't wait to try out all the new makeup that I got there is something about playing around with makeup that makes me so happy.


Previous post - Monday 19th May

Next post - Saturday 24th May

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Monday 19th May 2014

So today was World IBD Day and it was probably the best World IBD day that I have had so far.

I decided this morning that I was going to ask my favourite non IBD suffer's to retweet this picture.

So some of my favourite paranormal investigator's (yes I believe in ghosts), British Touring Car driver's, youtuber's and musicians posted the picture on their feed and so many of there followers retweeted it. I decided to send a thank you tweet to every person that retweeted the picture, I know a lot of people will think I am stupid but I was just so grateful.

Honestly words can not describe how happy I was that they retweet this picture it finally feels that people are starting to become more aware about these terrible illnesses, I was also able to chat to some new IBD warrior's and to people who have family members and friends with IBD.

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Friday 11th April 2014

Today the nightmare finally ended and I got discharged from hospital.

This morning the GI doctor's came round to do to there normal morning ward round and it was positive news, as it had been 36 hours since I had the dilation and I hadn't displayed any signs of surgical emphysema they said that they weren't going to bother with scan and I could start eating and drinking. I had some porridge and water for breakfast and they both went down okay so I was allowed to go home in the afternoon.

It is so nice to be out of there and I can't wait sleep in my own bed tonight. I would be lying though if I said I wasn't anxious about going home especially since they didn't do the scan to find out what was going on in my oesophagus but I feel okay and I am not in that much pain so I am sure everything is fine.

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Surgical emphysema occurs when air gets into tissues under the skin. This usually occurs in the skin covering the chest wall or neck, but can also occur in other parts of the body.

Thursday 10th April 2014

Today has been an extremely stressful, crappy day and I am so glad that it is finally over.

Despite all the stress I was under I did manage to get some sleep thanks to the lorazepam that they gave. I had to woken up multiple times during that night to get my blood pressure, temperature and oxygen levels checked because they were keeping a very close eye on me.

So when GI doctors came and did their ward round in the morning the consultant felt that there wasn't a oesophageal perforation because I was so well and didn't have any more pain then I normally do. The GI doctor would have been more then happy to let me go home but because he didn't do the dilation and the consultant radiologist did he was going to do what the radiologist had advised.

As the hours went past nobody was coming to take me for the scan. In the late afternoon the nurse in charge asked if I had been for my scan and I said no, she said that she would find out what was going on but the nurse never came back. Finally at roughly 7pm a doctor came to explain why I had not got my scan, apparently somebody in the radiology department took the request for the scan off the computer system and because the request was not on the computer when the GI doctors looked at it they just presumed it had been done.

This was the finally straw for me I couldn't handle anymore so I broke down and cried, I just want this nightmare to end.

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Wednesday 9th April 2014

So today was oesophageal dilation day and I was really looking forward to getting it done because I hadn't eaten any solid food for 3 months but procedure didn't go to plan. When I woke up in the recovery room I found that they had to put an I.V into my foot because the veins in my arms are completely shot but unfortunately there was worse news to come. The recovery nurse told me that I needed to get an urgent C.T scan done but she never told me the reason why I had to have it, so of course I start to panic. I am thinking to myself why do I need this scan? I have probably had this procedure done about 30 times in the past 5 years and not once have I needed to get a scan afterwards.

Three hours after I came back from the getting the dilation I still hadn't had the scan and nobody had told me what was going on, finally after four hours at just after 8pm two doctor's form the GI ward eventually told me what was going on. During the procedure the consultant radiologist thought that the oesophagus had torn during the dilation due to him over stretching it. Being told this made me panic even more and honestly I was really scared, I always knew that this was one of the risks of having a dilation but it is one of this things that will happen to you especially when you have had dialtions so many times before and nothing like this has ever gone wrong.

Due to it being so late in the evening I was told that I wouldn't be getting the scan today, it would have to be done the following morning and because of the complication they thought I had I was nil by mouth until they did the scan. Of course being nil by mouth meant that I couldn't take my anti anxiety medication so they had to give me half the standard dose of lorazepam, thankfully this medication helped calm me so fingers crossed I will be able to sleep.

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Monday 7th April 2014

Words cannot describe how frustrated I am with my health at the moment. I can't remember if I wrote about this but over 5 weeks ago I surgery to try and fix the open surgical wound that I have had for 5 and a 1/2 years, everything was going great but now there is a hole and there is stuff coming draining out of it. I was really hoping that this time it would be fixed so that I didn't have to daily dressings anymore but that is not the case.  I shouldn't really be that surprised though because how is a wound suppose to heal if the body is not getting enough nutrition.

So yesterday I started clearing out my bedroom because the new bedroom furniture should be here in the next 4 to 5 weeks. There might be one slight issue with the new furniture and that is the wardrobe space, I am going from 2 double wardrobes to one. When I was ordering the furniture I thought to myself I don't need 2 double wardrobes because I don't wear half the clothes that I have but when I was clearing one of the wardrobes I was unable to part with most of the clothes.

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