Monday 31st March 2014

I haven't written an entry for a few because I was really tired after my day out on Friday and also since Saturday my grumpy guts have been playing up something rotten.

So on Friday I went on the hunt for an old fashioned cream bookcase to match my new bedroom furniture, I looked round a few different shops but I was unable to find one that was suitable. :-( I may have not been able to find a bookcase but I did find a really comfy office chair that wasn't too expensive.

So because I was out for most of the day on Friday my body decided that it want to punish me for going out. For the past 3 days I have had a high temperature, this feeling that my stomach is going to explode, stomach and back pain. Despite all the problems I don't regret going out for the day, I refuse to let my illness control me. If I let the Crohn's and stricture's rule my life I wouldn't have a life

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Wednesday 26th March 2014

Today was oesophageal dilation day. So I got up at 6am packed my overnight bag did all the normal things i.e have a shower, wash my hair and headed off to the hospital.

15 minutes after arriving at the hospital the nurse came and asked why I was there because they weren't due to get any new patients today. I told her that I was there to get an oesophageal dilation and I showed her the appointment letter that I got in the mail, so she took the letter and went to phone my consultants secretary. A few minutes later she came back and told me that the dilation had been cancelled and rescheduled for the 9th April. Normally I would get angry at not being told that it had been postponed but it has happened so many times now that I just don't see the point at getting angry anymore and to be honest I wasn't that surprised that it been cancelled because my gut feeling for the past few days had been that it wasn't going to get done.

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If you would like to know why there wasn't any diary entries for 2 months then click on this link: http://crohnsquine.blogspot.co.uk/2014/03/where-have-i-been.html

Sunday 23rd March 2014

I have been extremely tired recently and all I do is sleep. I sleep all night, then I am awake for a few hours in the morning, then I go back to sleep, wake in the evening, stay awake for a few hours and then go back to sleep. (I have no idea if that sentence makes any sense) I am finding it so ridiculously hard  to get anything done at the moment because by the time I get ready to go out somewhere I am exhausted and need to go to sleep.

This coming Wednesday (March 26th) I am getting another oesophageal dilation done so I am really hoping that once I get some proper food into me my energy levels will go up. It's weird how I gone from to complaining about not being able sleep to complaining about sleeping to much but I suppose this is what happens when you have IBD.

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If you would like to know why there hasn't been any diary entries for 2 months then click on this link: http://crohnsquine.blogspot.co.uk/2014/03/where-have-i-been.html

Sunday 26th Janaury 2014

This weekend hasn't been too bad thankfully, I did have a couple of HSP looking spots appear on my legs so that explains why I have the joint pain.

I have finally found a horse riding school that I like so I have spent a good portion of my weekend looking at horse riding gear. The only I am not sure about is do I just book a lesson now or wait until the spring? I cannot wait to get back in the saddle though, it has been such a long time since I last went riding but this is the first step in the attempt to get my life back on track.

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Friday 24th January 2014

So I haven't written for a while as I have been struggling again. At the moment I have really lost my way and I am struggling to find my way back, I know that all these feelings are due to the lack of proper nutrition well that's what the doctor's say is causing it.

It is very funny how not eating affects the brain so much, at the moment I am unable to concentrate for longer then 5 minutes, I can barely string a sentence together when I write and my mood is constantly low. I always wonder if anybody else feels like this when they haven't had proper food for a few weeks.

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Thursday 16th January 2013

I am unable to eat any solid food again, I was really hoping that the lining of my oesophagus had just become irritated and swollen shut but that is not the case by the looks of it. At first I was upset that this had happened but now I am just plain angry, I don't understand why it has narrowed so bad because I haven't done anything different. 

So the lady from Bupa phoned today to arrange the delivery of the humria injections and sharps bin. Delivery has been arranged for Monday which is just in time for my next dose of humria on Thursday. 

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Monday 13th January 2014

These last few days have been pretty rough. :-( To start with I develop a obstruction on Friday night and wasn't able to pass it until Sunday night, the offender that caused this obstruction was a bit of green pepper and yes I probably shouldn't have eaten something that had peppers in it but I love peppers and I really miss eating them.

Yesterday my oesophgeal stricture's became a big issue again, I tried to eat but food wouldn't go past the stricture and I had to bring it back up. I am extremely disheartened by this because it is only 3 and a half weeks since my dilation and they shouldn't be this narrow already.

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