Friday 11th April 2014

Today the nightmare finally ended and I got discharged from hospital.

This morning the GI doctor's came round to do to there normal morning ward round and it was positive news, as it had been 36 hours since I had the dilation and I hadn't displayed any signs of surgical emphysema they said that they weren't going to bother with scan and I could start eating and drinking. I had some porridge and water for breakfast and they both went down okay so I was allowed to go home in the afternoon.

It is so nice to be out of there and I can't wait sleep in my own bed tonight. I would be lying though if I said I wasn't anxious about going home especially since they didn't do the scan to find out what was going on in my oesophagus but I feel okay and I am not in that much pain so I am sure everything is fine.

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Surgical emphysema occurs when air gets into tissues under the skin. This usually occurs in the skin covering the chest wall or neck, but can also occur in other parts of the body.

Thursday 10th April 2014

Today has been an extremely stressful, crappy day and I am so glad that it is finally over.

Despite all the stress I was under I did manage to get some sleep thanks to the lorazepam that they gave. I had to woken up multiple times during that night to get my blood pressure, temperature and oxygen levels checked because they were keeping a very close eye on me.

So when GI doctors came and did their ward round in the morning the consultant felt that there wasn't a oesophageal perforation because I was so well and didn't have any more pain then I normally do. The GI doctor would have been more then happy to let me go home but because he didn't do the dilation and the consultant radiologist did he was going to do what the radiologist had advised.

As the hours went past nobody was coming to take me for the scan. In the late afternoon the nurse in charge asked if I had been for my scan and I said no, she said that she would find out what was going on but the nurse never came back. Finally at roughly 7pm a doctor came to explain why I had not got my scan, apparently somebody in the radiology department took the request for the scan off the computer system and because the request was not on the computer when the GI doctors looked at it they just presumed it had been done.

This was the finally straw for me I couldn't handle anymore so I broke down and cried, I just want this nightmare to end.

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Wednesday 9th April 2014

So today was oesophageal dilation day and I was really looking forward to getting it done because I hadn't eaten any solid food for 3 months but procedure didn't go to plan. When I woke up in the recovery room I found that they had to put an I.V into my foot because the veins in my arms are completely shot but unfortunately there was worse news to come. The recovery nurse told me that I needed to get an urgent C.T scan done but she never told me the reason why I had to have it, so of course I start to panic. I am thinking to myself why do I need this scan? I have probably had this procedure done about 30 times in the past 5 years and not once have I needed to get a scan afterwards.

Three hours after I came back from the getting the dilation I still hadn't had the scan and nobody had told me what was going on, finally after four hours at just after 8pm two doctor's form the GI ward eventually told me what was going on. During the procedure the consultant radiologist thought that the oesophagus had torn during the dilation due to him over stretching it. Being told this made me panic even more and honestly I was really scared, I always knew that this was one of the risks of having a dilation but it is one of this things that will happen to you especially when you have had dialtions so many times before and nothing like this has ever gone wrong.

Due to it being so late in the evening I was told that I wouldn't be getting the scan today, it would have to be done the following morning and because of the complication they thought I had I was nil by mouth until they did the scan. Of course being nil by mouth meant that I couldn't take my anti anxiety medication so they had to give me half the standard dose of lorazepam, thankfully this medication helped calm me so fingers crossed I will be able to sleep.

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Monday 7th April 2014

Words cannot describe how frustrated I am with my health at the moment. I can't remember if I wrote about this but over 5 weeks ago I surgery to try and fix the open surgical wound that I have had for 5 and a 1/2 years, everything was going great but now there is a hole and there is stuff coming draining out of it. I was really hoping that this time it would be fixed so that I didn't have to daily dressings anymore but that is not the case.  I shouldn't really be that surprised though because how is a wound suppose to heal if the body is not getting enough nutrition.

So yesterday I started clearing out my bedroom because the new bedroom furniture should be here in the next 4 to 5 weeks. There might be one slight issue with the new furniture and that is the wardrobe space, I am going from 2 double wardrobes to one. When I was ordering the furniture I thought to myself I don't need 2 double wardrobes because I don't wear half the clothes that I have but when I was clearing one of the wardrobes I was unable to part with most of the clothes.

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Monday 31st March 2014

I haven't written an entry for a few because I was really tired after my day out on Friday and also since Saturday my grumpy guts have been playing up something rotten.

So on Friday I went on the hunt for an old fashioned cream bookcase to match my new bedroom furniture, I looked round a few different shops but I was unable to find one that was suitable. :-( I may have not been able to find a bookcase but I did find a really comfy office chair that wasn't too expensive.

So because I was out for most of the day on Friday my body decided that it want to punish me for going out. For the past 3 days I have had a high temperature, this feeling that my stomach is going to explode, stomach and back pain. Despite all the problems I don't regret going out for the day, I refuse to let my illness control me. If I let the Crohn's and stricture's rule my life I wouldn't have a life

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Wednesday 26th March 2014

Today was oesophageal dilation day. So I got up at 6am packed my overnight bag did all the normal things i.e have a shower, wash my hair and headed off to the hospital.

15 minutes after arriving at the hospital the nurse came and asked why I was there because they weren't due to get any new patients today. I told her that I was there to get an oesophageal dilation and I showed her the appointment letter that I got in the mail, so she took the letter and went to phone my consultants secretary. A few minutes later she came back and told me that the dilation had been cancelled and rescheduled for the 9th April. Normally I would get angry at not being told that it had been postponed but it has happened so many times now that I just don't see the point at getting angry anymore and to be honest I wasn't that surprised that it been cancelled because my gut feeling for the past few days had been that it wasn't going to get done.

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If you would like to know why there wasn't any diary entries for 2 months then click on this link: http://crohnsquine.blogspot.co.uk/2014/03/where-have-i-been.html

Sunday 23rd March 2014

I have been extremely tired recently and all I do is sleep. I sleep all night, then I am awake for a few hours in the morning, then I go back to sleep, wake in the evening, stay awake for a few hours and then go back to sleep. (I have no idea if that sentence makes any sense) I am finding it so ridiculously hard  to get anything done at the moment because by the time I get ready to go out somewhere I am exhausted and need to go to sleep.

This coming Wednesday (March 26th) I am getting another oesophageal dilation done so I am really hoping that once I get some proper food into me my energy levels will go up. It's weird how I gone from to complaining about not being able sleep to complaining about sleeping to much but I suppose this is what happens when you have IBD.

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If you would like to know why there hasn't been any diary entries for 2 months then click on this link: http://crohnsquine.blogspot.co.uk/2014/03/where-have-i-been.html