If you read my diary entry from yesterday you will know that I was waiting for the IBD nurse to phone me back, well she phoned me and let's just say I am a bit confused.
At my last clinic appointment in August I saw my GI consultant and he said that the only medication that they could use to treat the Crohn's flare and fistula was humria, I couldn't make my mind up at that clinic appointment and said I would have to think about it. Now the main reason for the clinic appointment that I cancelled on Wednesday was to tell them that I had decided that I would have them and that was also the reason why I phoned the IBD nurse to tell her the decision that I made so they could start the ball rolling and get everything sorted.
So today I had a message from the IBD nurse saying that I have to go to a clinic appointment and see my consultant, I don't understand why I have to go and see him because as far as I know they were just waiting for me to say yes to the injections. I am very, very confused at the moment.
Monday 14 October 2013
Thursday 10th October 2013
So yesterday I didn't manage to go to my clinic appointment because I was feeling too unwell to go. For me to get to hospital appointments is not easy, I have to take 2 buses to get there and 2 to get home also one of the buses is an hourly service. As I couldn't get to my clinic appointment I phoned the IBD nurse yesterday and I told her that I would start the humria injections (because that is the meds my GI wants me to take), she said that she would speak to my consultant and phone me back which has not happened yet.
Today I got the rest of the halloween decorations and Yankee Candles that I ordered.
I really shouldn't be doing more shopping because I really don't have the money to spend on unnecessary things. Every time I am sick I always shop to the point that I buy things that I don't even need which is really bad but it is one of the things that I do to cope with the bad stuff that happens in my life.
Hopefully the IBD nurse phones me back tomorrow and we can get these injections started before things get too bad.
Today I got the rest of the halloween decorations and Yankee Candles that I ordered.
I really shouldn't be doing more shopping because I really don't have the money to spend on unnecessary things. Every time I am sick I always shop to the point that I buy things that I don't even need which is really bad but it is one of the things that I do to cope with the bad stuff that happens in my life.
Hopefully the IBD nurse phones me back tomorrow and we can get these injections started before things get too bad.
Tuesday 8 October 2013
Tuesday 8th October 2013
Today has been another day of me feeling miserable. I really have no idea what my gut is doing it is painful but it also feels weird, I am also feeling really tired plus I have no appetite and normally I love food so when my appetite disappears it means there is definitely something wrong. Thankfully I have the IBD clinic tomorrow so fingers crossed they set up a plan of action.
So my 3rd Halloween decoration didn't arrive today which means I will probably not get it until Saturday now, :-( I am actually pretty disappointed because it was the one that I most excited about. A lot of people are going to be sick of me going on about Halloween but this is my dairy so I am going to write about what I want and Halloween is one of my favourite holidays. Also you have one life so you have to enjoy it.
So my 3rd Halloween decoration didn't arrive today which means I will probably not get it until Saturday now, :-( I am actually pretty disappointed because it was the one that I most excited about. A lot of people are going to be sick of me going on about Halloween but this is my dairy so I am going to write about what I want and Halloween is one of my favourite holidays. Also you have one life so you have to enjoy it.
Monday 7th October 2013
I am not sure why I am really writing a diary entry because guess what I am still feeling rubbish. I didn't get any sleep last night either, so no sleep and Crohn's flare equals a very grumpy Leona.
I think I need to get back into some old hobbies to keep myself distracted, I have always wanted to make this recipe that I have seen on the internet for Chilli Con Carne so maybe I should make that this week. I have also had this idea for a phone case so maybe I should try making it as well.
Today I got 2 of the 3 Halloween decorations that I ordered so that made my day much better. I am really hoping that 3rd thing comes in the post tomorrow because I have the IBD clinic on Wednesday morning, so I won't be here to answer the door to the post man and then I will have to wait until the weekend to get it because that will be the first opportunity I have to collect it from the Post Office.
I think I need to get back into some old hobbies to keep myself distracted, I have always wanted to make this recipe that I have seen on the internet for Chilli Con Carne so maybe I should make that this week. I have also had this idea for a phone case so maybe I should try making it as well.
Today I got 2 of the 3 Halloween decorations that I ordered so that made my day much better. I am really hoping that 3rd thing comes in the post tomorrow because I have the IBD clinic on Wednesday morning, so I won't be here to answer the door to the post man and then I will have to wait until the weekend to get it because that will be the first opportunity I have to collect it from the Post Office.
Monday 7 October 2013
Sunday 6th October 2013
So there really hasn't been much point in me writing everyday this week because everyday has been the same. So for the whole of this week I have been sick, at the beginning of the week I was sick with a cold, flu viral thing and then by the end of the week my Crohn's had flared up in my bowel, oesophgaus and mouth. I think the reason why my Crohn's flared up so badly is due to that virus thing I had, I am really hoping that it will settle down itself but if doesn't at least I have an appointment with the IBD nurse in Wednesday.
Also this week the cat had to go back to the vet because of her hip but this time they said that it might be her pelvis that is causing her the pain not the hip. When she was there the vet also found a lump in stomach and as soon as I heard that my heart sunk but thankfully they said that it is a fatty lump, it will need to be checked regularly for the rest of her life to make sure that it doesn't turn into something else.
The last few days I have been feeling really agitated and irritable, I am not sure why I feel this way maybe it is hormone's or maybe it is just due to all the crap I have had to deal with this week.
The good things that happened this week (and yes despite a shitty week I can still find good things) were I ordered 3 new Halloween decorations and Yankee Candles. A lot of people think that I am extremely weird for still decorating and celebrating but do I care what they think NO!!!
Also this week the cat had to go back to the vet because of her hip but this time they said that it might be her pelvis that is causing her the pain not the hip. When she was there the vet also found a lump in stomach and as soon as I heard that my heart sunk but thankfully they said that it is a fatty lump, it will need to be checked regularly for the rest of her life to make sure that it doesn't turn into something else.
The last few days I have been feeling really agitated and irritable, I am not sure why I feel this way maybe it is hormone's or maybe it is just due to all the crap I have had to deal with this week.
The good things that happened this week (and yes despite a shitty week I can still find good things) were I ordered 3 new Halloween decorations and Yankee Candles. A lot of people think that I am extremely weird for still decorating and celebrating but do I care what they think NO!!!
Friday 4 October 2013
Sunday 29th September 2013
So I woke up today feeling absolutely crap I think it is due to doing to much yesterday and the cold, flu viral thing that I have. People always say to me that I shouldn't do things if I am not feeling well but I was coming on this weekend trip come hell or high water.
So because I was feeling so rubbish we really didn't do that much today. We checked out of the hotel at 12pm because that is the time we had to be out by and headed to Victoria station, there is a few shops at the station so we had a look around them before getting on the Gatwick Express.
We arrived far to early at the airport and had to wait an hour before we could check in for our flight, I don't normally mind waiting but there was nothing to do. Once we had checked in and got through to departures I did my favourite thing, duty free shopping. Duty free was where I spend most of money on this trip and can you guess what I ended up buying? That's right more makeup as soon as this girl see discounted makeup I have to spend, spend, spend.
The flight home was much better then the one in May thankfully, last time we flew home from Gatwick we had to sit on the tarmac with the doors shut for half an hour. I hate it when you have to sit on a plane that isn't moving with doors shut because for some reason I start to feel really claustrophobic.
I arrived home after 9pm and decided to take some lemsip and head to straight bed because I was feeling so unwell, screw unpacking my suitcase it can be done tomorrow.
So because I was feeling so rubbish we really didn't do that much today. We checked out of the hotel at 12pm because that is the time we had to be out by and headed to Victoria station, there is a few shops at the station so we had a look around them before getting on the Gatwick Express.
We arrived far to early at the airport and had to wait an hour before we could check in for our flight, I don't normally mind waiting but there was nothing to do. Once we had checked in and got through to departures I did my favourite thing, duty free shopping. Duty free was where I spend most of money on this trip and can you guess what I ended up buying? That's right more makeup as soon as this girl see discounted makeup I have to spend, spend, spend.
The flight home was much better then the one in May thankfully, last time we flew home from Gatwick we had to sit on the tarmac with the doors shut for half an hour. I hate it when you have to sit on a plane that isn't moving with doors shut because for some reason I start to feel really claustrophobic.
I arrived home after 9pm and decided to take some lemsip and head to straight bed because I was feeling so unwell, screw unpacking my suitcase it can be done tomorrow.
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