This weekend hasn't been too bad thankfully, I did have a couple of HSP looking spots appear on my legs so that explains why I have the joint pain.
I have finally found a horse riding school that I like so I have spent a good portion of my weekend looking at horse riding gear. The only I am not sure about is do I just book a lesson now or wait until the spring? I cannot wait to get back in the saddle though, it has been such a long time since I last went riding but this is the first step in the attempt to get my life back on track.
Monday 27 January 2014
Saturday 25 January 2014
Friday 24th January 2014
So I haven't written for a while as I have been struggling again. At the moment I have really lost my way and I am struggling to find my way back, I know that all these feelings are due to the lack of proper nutrition well that's what the doctor's say is causing it.
It is very funny how not eating affects the brain so much, at the moment I am unable to concentrate for longer then 5 minutes, I can barely string a sentence together when I write and my mood is constantly low. I always wonder if anybody else feels like this when they haven't had proper food for a few weeks.
It is very funny how not eating affects the brain so much, at the moment I am unable to concentrate for longer then 5 minutes, I can barely string a sentence together when I write and my mood is constantly low. I always wonder if anybody else feels like this when they haven't had proper food for a few weeks.
Friday 17 January 2014
Thursday 16th January 2013
I am unable to eat any solid food again, I was really hoping that the lining of my oesophagus had just become irritated and swollen shut but that is not the case by the looks of it. At first I was upset that this had happened but now I am just plain angry, I don't understand why it has narrowed so bad because I haven't done anything different.
So the lady from Bupa phoned today to arrange the delivery of the humria injections and sharps bin. Delivery has been arranged for Monday which is just in time for my next dose of humria on Thursday.
Tuesday 14 January 2014
Monday 13th January 2014
These last few days have been pretty rough. :-( To start with I develop a obstruction on Friday night and wasn't able to pass it until Sunday night, the offender that caused this obstruction was a bit of green pepper and yes I probably shouldn't have eaten something that had peppers in it but I love peppers and I really miss eating them.
Yesterday my oesophgeal stricture's became a big issue again, I tried to eat but food wouldn't go past the stricture and I had to bring it back up. I am extremely disheartened by this because it is only 3 and a half weeks since my dilation and they shouldn't be this narrow already.
Yesterday my oesophgeal stricture's became a big issue again, I tried to eat but food wouldn't go past the stricture and I had to bring it back up. I am extremely disheartened by this because it is only 3 and a half weeks since my dilation and they shouldn't be this narrow already.
Saturday 11 January 2014
Friday 10th January 2014
So everything is going good regarding the humria, there hasn't been any nasty side effects like the previous Crohn's medication thank goodness. The one and only side effect that I have noticed is it has made me very tired, the first night after I had the injections I slept for 19 hours. Last night I slept for 16 hours so I am gradually sleeping less and less, a lot of people are not normally happy with feeling really tired but as someone who suffers from insomnia I think it's great because I can finally get some decent nights sleep.
Tuesday 7 January 2014
Tuesday 7th January 2014
So I had absolutely no reason to worry about these hurmia injections because they were super duper easy to do. The IBD nurse asked if I wanted her to do the first injection but I thought I should just take the bull by the horns and do it myself because normally the more I think about things the more stressed out I get.
The injection was pretty simple all you had to do was check the expiry date, make sure there was a bubble, take the caps off and then inject. A good thing about using the humria pens is you don't see the needle (I will do a more in depth post on my humria experience on my other blog).
At the moment I haven't noticed any side effects which is amazing because when I have taken Crohn's medication in the past I always start suffering with sickness and stomach issues but it really doesn't look like that this is going to happen this time.
The injection was pretty simple all you had to do was check the expiry date, make sure there was a bubble, take the caps off and then inject. A good thing about using the humria pens is you don't see the needle (I will do a more in depth post on my humria experience on my other blog).
At the moment I haven't noticed any side effects which is amazing because when I have taken Crohn's medication in the past I always start suffering with sickness and stomach issues but it really doesn't look like that this is going to happen this time.
Monday 6 January 2014
Monday 6th Janaury 2014
Tomorrow is humria injection day. I am so glad that it is here but I am also really nervous about it as it will be the first time that I have injected myself. Nowadays everybody does there own humria or methotrexate injections but back in the day when I had methotrexate it was given to me by a hospital ward nurse, oh how times have changed in such a short period of time.
Saturday 4th January 2014
So I have gone from not being able to sleep to sleeping all the time, I have given up on trying to understand how my body works. I have also started to have fever's which I really hope is Crohn's related because I don't want to have to delay the start of my humria treatment.
So today I got an early birthday present in the mail and I couldn't make up my weather I should open it or not because my birthday isn't until the 3rd of February, but the temptation was too much and I had to open it. So in my package was 2 pair of pj's and a hoodie from David and Goliath.
These are amazing birthday present's, I am such a lucky person.
So today I got an early birthday present in the mail and I couldn't make up my weather I should open it or not because my birthday isn't until the 3rd of February, but the temptation was too much and I had to open it. So in my package was 2 pair of pj's and a hoodie from David and Goliath.
These are amazing birthday present's, I am such a lucky person.
Friday 3 January 2014
Thursday 2nd January 2014
Only 5 more days until I start hurmia and it can't come soon enough because I am so sick of feeling rubbish every single day. I would be lying if I didn't say I was really nervous or maybe scared is a better word to use as all previous medication failed to touch my Crohn's. I am so scared that the same thing is going to happen with humria and then I am going to be left with no other medication option. Yes there is a new drug coming out called Vedolizumab but from what I have read about it, it is effective at treating Colitis but not so effective at treating with Crohn's.
Wednesday 1 January 2014
Wednesday 1st January 2014
Well my New Year has been very quiet one as I don't get the of the whole New Year thing, honestly I think is one of the most overrated holiday's. Everybody is like New Year, new start but it has never been like that for me I go to bed sick on new year's eve and wake up sick on New Year's day, also I have a lot of upcoming hospital treatment this year which I am not exactly looking forward too.
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