I have really been struggling since last weekend not only physically but mentally too.
Last weekend I ended up having an ostomy output that I have never had before, it had this weird ground coffee look which of course sent me into a panic because if you bring up ground coffee vomit it normally means there is blood in the vomit. Thankfully I had some trusted Crohn's friends that I could ask about his problem and they reassured me that the output was not necessarily blood.
As I was talking to them we got onto the subject of my oesophageal stricture's and how I was being treated and lets just say I have been thinking about that conversation at great length since last weekend. They are right with what they were saying I should get a second opinion about my stricture's, my consultant has been saying these past few years that nothing can be done with them but that is just his opinion. I have asked a couple of times now to be referred to a upper GI surgeon at my local hospital but he has never done the referral, I don't honestly know why he does not do the referral because a) it would stop me annoying him about it and b) the law says that everybody has a right to a 2nd opinion. Last year asked my GP if he could do a referral to a consultant in Oxford because there is a really good doctor who works at that hospital but according to my GP he cannot do an out of area referral. This whole situation is a complete nightmare no wonder I suffer from depression and guess what the mental health experts said, they cannot help me with my depression because it is related to my physical health.
It is time for change, I cannot keep living this way. I am 26 years old I should be out enjoying myself not stuck in this house 24/7, I need to get my fighting spirit back, I am not my illness.
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