Since I last wrote an entry over 2 weeks ago the horrible stomach pain that I had settled down all by it's self and actually when I think about it these past couple of weeks my stomach hasn't really been that bad. Yes I still get my normal stomach issues, spells where I feel really sick, I do still get fatigue and dehydrated as well but nothing has got any worse which is the most important thing.
I have also made some progress with the agoraphobia this past week. I have finally managed to get outside, now it was only to put stuff in the bins and to go to the garage and get some juice from the fridge. It may just be small steps but it is better then nothing especially when I have had to do it all by myself as I never did get the help that I asked for.
The 3rd and final good thing that has happened over the past few weeks is the new PEG feed regime, it may not fix all the gut issues that I have when I use the feed and it takes 16 and a 1/2 hours for a 1 litre bag to go through but it is making a difference.
Previous post - Wednesday 9th July
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So since last Friday I have been feeling really rubbish again and on Saturday and Sunday I was in a lot of pain especially when I got up to walk. Since the weekend I have developed a temperature and I have been feeling sick, on Monday I honestly thought I was going to land in hospital The main problem that I have is I don't what is causing the pain is it a Crohn's flare, is it the bowel adhesions or is it the fistula. The last time that I spoke to the hospital about this was at my clinic appointment in March and they said it was probably the fistula that was causing it so they gave me some antibiotics to take for a week.
I did think about going to my GP to get stronger pain medication but they are limited to what pain meds they can prescribe and I am already taking paracetamol and dihydrocodeine so I don't think they will be able to give anything that is much stronger but I suppose I won't know if I don't ask.
I got my new converse shoes at the weekend so it did make me feel a bit better because this girl loves a new pair of shoes.
And yesterday I got some or should I say a lot of their stoma care accessory sample's from Opus Healthcare. I only ordered four samples so when I got a 1kg box delivered I couldn't understand why it was such a big box but it turned out that they had given every type of sample that I they do.
I can't wait to try them out and I really hope that they will help with the stoma issues that I have been having.
Previous post - Wednesday 2nd July
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So this week hasn't been a good week so far the Crohn's has decided to flare up so of course that means I have a fever, abdo pain and feeling sick and if that wasn't enough I have managed to hurt my shoulder, goodness knows I managed to do it, it's like I can do much physical exercise at the moment.
So after finally waiting for over a year I finally got to talk to a CPN (community psychiatric nurse). My GP referred me to one because he thought that getting some cognitive behavioral therapy might help with the depression and anxiety. I chatted on the phone to her for a little while and explained all the problems that I was having, she said that she is not sure if she will be able to help me and will speak to a psychologist to get their opinion. This is not the first that this is happened they say all the mental health issues that I have are related to my physical health and until it improves my problems with depression and anxiety is unlikely to go away. I haven’t spoken to the occupational therapist that my GP referred me to last week yet but I really hope that the same doesn’t happen when I speak to the OT, I really do need some help because I feel completely and utterly lost at the moment.
Seeing as I have been going through a rough patch I decided that I was going to treat myself and ordered a new pair of Converse today, I have been meaning to get a new pair for ages because my other ones ended up with holes in them and I had to throw them out. This time round I purchased the purple instead of the black ones plus they were in the Schuh sale so I saved £20.
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