So my physical health is what I like to call stable things aren't any better or worse. The 2 stricture's in my oesophagus are still causing the same old issues such as crushing pain in my chest that spreads up to my collar bone but I am still able to eat pureed food which is the main thing because if I couldn't eat pureed food I would probably be on TPN which I don't want. As for my stomach I still have good days and bad days but I got very good news at my last clinic appointment and that is the pelvic MRI scan that I had done in November showed that my small bowel to cervical fistula has healed up by itself. I am not a 100% sure but I think that it is quite rare for fistulas to heal up without some intervention.
A few weeks ago I had a IBD clinic appointment and nothing new happened because nearly everything that was discussed at October appointment had not been carried out. I did find out what happened to the portacath procedure though, someone had decided that I didn't need it more! I was really mad at this because they are not the ones that have to be stabbed a billion times with a needles to get blood tests and cannula's. I have also not been able to get my iron infusion because I didn't have the port, the doctor that I seen at the clinic said that he would sort it out so I will be getting it at some point. Two other things that happened at the appointment is they are going to send me for a small bowel MRI study and organise to have my disgusting old peg tube replaced under a general anesthetic.
I am still currently waiting to get my false teeth. I had to cancel an appointment because I was sick and then my dentist had to cancel an appointment due to him being sick so it's taking longer then expected. I really hope that I will be able to get them in the next few weeks.
Also since I last wrote I have finally decided to take the plunge and set up an etsy store so I can sell a variety of handmade things. For a long time now I have been wanting to set up my own store but the reason why I haven't done it is I am scared that I will fail at it. In dream world I would earn enough money to call it my job and get off the benefit system but I find that luck is never really on my side.
That is all for today's post, sorry that it's a long one I just had so much to write about. Goodbye for now.
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