The fatigue wouldn't have been this bad if they hadn't cancelled my damn portacath procedure. If I got the port I would have received the much needed iron infusion, my energy levels would have been better and I could have done everything that I wanted to do. There was an incident that happened this week that could have had serious consequences and it was all due to me falling asleep because I was so tired. This week wasn't a complete bust though I did manage to make Christmas biscuits with my sister who has Down's Syndrome and wrap my Christmas presents
One of the worst things about me is I am my own worst enemy. I set myself unrealistic goals and then get so mad at myself when I don't achieve those goals. I may have been chronically ill for 16 years now but sometimes I still struggle to admit to being a sick person.
Previous post: Sunday 20th December
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Don't be too hard on yourself. You do what you can and lots more than some. You are doing a great job xx
ReplyDeleteHi, Leona your blog is amazing. It's hard having Crohn's and trying to live with it, I get the whole invincible disease. it can be so hard for people to understand that your sick when you look not so sick. but your blog is amazing and sharing your story is brave. #fightingforacure
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